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It was from Karl Stargardt, a German ophthalmologist, that Stargardt's
Macular Dystrophy derived its name in 1909. It is the most frequently
encountered juvenile onset form of the group of conditions known as
'macular dystrophies'.
Listed below are some sites and support group addresses that I thought
would be of interest to those interested in Stargardts Disease.
Please send an e-mail to info@stargardts.net if
you find any others and I can update the list.
Research
NEW! 22 September 2011 - UK medics lead Europe's first embryonic stem cell trial - from BBC News regarding Stargardts - "They will inject retinal cells into the eyes of 12 patients with an incurable disease, Stargardt's macular dystrophy ...".
Expert Answers on Stargardt’s Disease - by The New York Times, July 21, 2011.
Blogs regarding Stargardts NEW!
Living with Stargardt's - blog started September 2008 by Jen in Canada.
LVATUG blog - serving the North Carolina Triangle low vision community in USA
See Through My Eyes - Stargardt's Disease - written by C.R. in Sydney, Australia
Inspiration
Judy's
Jolts of Hope - link submitted by Judy who says "It is about my
struggle towards acceptance of Macular Degeneration which hopefully might
help others better understand this devastating eye disease."
eSight Careers
Network™ - submitted by Nan Hawthorne who says "Career skills for
visually impaired people. I am a content developer for them and myself
have Stargardts."
Information
Wikipedia now has a posting for Stargardts Disease.
Foundation Fighting Blindness has a whole section on just Stargardts as well as forums etc.
Vaughan Hillier wrote:
"I am happy to announce that your website inspired me to set up a website specifically for Australians with Stargardts Disease. The address is: www.stargardts-au.org."
I have received a few e-mails about
Dr. Nolan and his treatment that seems to help patients with Stargardts.
He has a website at: www.nolaneye.com/.
Kris W. at spacialistics@yahoo.com
wrote: "Hi, I just wanted to make you aware of an eye doctor in
Connecticut, Dr. Nolan. This doctor is having great success in improving
the vision of people with Stargardt Disease and other eye conditions by
administering Echothiophate eye drops. I myself have been seeing him for a
few weeks now and my vision is improving. granted I'm not seeing 20/20,
but its great. His website is www.nolaneye.com . If you need anymore info.
please e-mail me back."
See also Loretta's
story
THE CHECKERED
EYE PROJECT works to increase awareness of the Checkered Eye
emblem, a new option for communicating the fact that a person has low
vision.
"Macular Degeneration" by Dr. Lylas G. Mogk, M.D.
"This is a
great new book" wrote Tom Perski.
RNIB in England provides information as well as
contact addresses.
Western Australian Retinitis Pigmentosa
Foundation has a section on Stargardts.
MD Support
- The Eyes of the Macular Degeneration People - offers excellent
support via information, chat channel options, e-mail support etc. Even
includes some photos showing how MD affects our vision. I highly recommend
joining in at the Stargardts Room at MD Forum. See also the section under Library/ Eye
Conditions about Stargardts.
The Macular Degeneration
Foundation - contains a good link page as well as option to get a
chat channel and e-mail list.
Access and Equipment
Axistive - World's Leading Assistive Technology News Portal
Blindness Resource
Centre has a good listing under "Low Vision resources" and
"Access" for computer adaptive devices
Ai Squared - Leaders in
Low Vision Software. I use Zoom Text and will now use Zoom Text Xtra
Level 2 with Speech - you can download a free 30 day trial version!
The Low Visoin Gateway
which is an excellent resource including links specifically for Stargardts
Addresses of Support Groups
Association for Macular Diseases 210 E. 64th Street New
York, NY 10021 (212) 605-3719 - Offers education and information
on macular disease through seminars, newsletters, and a hotline. Offers
counseling to patients and their families.
Macular Degeneration International is now a part of Foundation Fighting Blindness
Toll Free Helpline 1-800-683-5555
EMail: MDInfo@blindness.org
- Provides support for people affected by inherited macular
degenerations including Stargardt's disease.
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