I am so happy to find stargardts.net. My daughter-in-law was diagnosed at 19. Her goal? To become a doctor. Christine, Caroline (in particular) & Chuck who have also made comments under the Top 10 Stargardt’s Frustrations, I have many questions to ask you. In general, at what age did the blind spot become so fuzzy that it – or did it? – interfere with your daily home or work routine? We meet today to figure a plan: that she would go in the direction of becoming a doctor until such time that she could no longer practice and then she would teach. I know that each individual is different in the way Stargardt’s progresses but we are looking at the best case scenario with the worst in the background.
I’ve learned that the blind spot is caused by a vitamin A deposit. Do you diligently cut back on Vitamin A, have you been told that something in your system doesn’t process VitA well? And if so, what is it? I’ve seen that bilberry, areds are helpful. Did any of you take these and do you believe they were helpful in forestalling the effects of Stargardt’s? Were you told that certain foods would help? Anything holistic? Eye exercises? I’m asking these because you (and I) are over 50 and I wanted to find those who are older that were diagnosed in their teens or twenties. Your input, advice and information will be greatly appreciated Thank you so much