4 comments:

1. hello i was 22 when i aas diagnosed with stargardt’s disease. Now I am 36 and legally blind. I’ve done so much research lonely years but I have to say I’ve heard a lot about the omega-3 remedy helping people with Starbucks improve their vision significantly and also about doctor Dr.Nolan at Nolan Eye Institute in Connecticut that is $1,500 to see him the first time but your vision does get better from what they say. After all the research I’ve done I learned it Star Wars is basically toxic waste buildup on your retina and it’s caused b I simple protein Gene called the ABC4A gene , which turns mutant, causing stargardt’s disease and it’s deteriayion of the retina . This Gene is carried by both parents in order for your child to get it . It is your genetic makeup. It cannot be changed even when you get new eyes because your actual gene . My sister has it also. What’s funny is after having my first son is when I started seeing the flashes but she didn’t start seeing anything till after her third child was born . I truly think that trauma to the body triggers the gene. I called Dr. Nolan’s office at the Nolan Eye Institute in Connecticut after reading the article for Loretta story on here and they told me if I qualify after all my records his fee is $1,500. And the drops are $45. After having star guards for 14 years now, I’m willing to try anything to restore some of my vision or keep it from getting worse right now I only see my peripheral. I’ll let you know if it works when I leave the money up to try it and blessed day!!

2. I just found out 3 days ago that my daughter has Stargardt Disease. Can I give her my eyes? I know that probably sounds silly, but again, I’m 3 days in and scared to death that my baby who will be 21 in a week and a half is going to be blind in two years. Her life is just getting started….I’ve lived mine. She’s an artist, she paints. She needs her eyes.

3. Hi,
   I have just read through some of your posts and I would like to ask you some questions about your condition since I recently have been diagnosed with Stargardt´s and my eye doctor has some difficulties to understand as I try to explain what I see. I am a 25 years old girl from Sweden and got the diagnos in April this year, so everything is new for me. I started to notice some vision loss at age of 16, but it was not severe and I managed to live normal life. At age of 21 I started to notice some floaters or black spots mostly in my right eye but it was not until 2016 when I noticed that I got more spots and they become even bigger. After examination of my eyes with ERG, they told me that my retina was very thin (thinner in the left eye) and that I also have dystrophy in macula. I am not sure enough but my doctor told me that she could not see yellow flecks (typiclly for Stargardt). However, they took blood for genetic test to see if there is any mutation in gene ABCA4 or other genes. My doctor said that she mistakes Stargardt and I will receive the result from the genetic analysis in October.
   I am about to finish my studies at univeristy as engineer in nanoscience, but right now it feels like my entire world is just about to collapse. I am wondering if you also see floaters, have headache, pain in the eyes, photosensitive and how do you live your daily life, do you use any special sunglasses etc. I will be very glad to hear about your symptoms in the beginning of the disease and what symptoms did you develop during the time. Thanks!

   1. Hi, if you would like to mail to info@stargardts.net and then I can write a more personal mail reply to you with how the progression of Stargardts has been for me.
      /Webmaster

Comments are closed.